Lea JabreJul 23Advocacy Corner: Lea JabreWe asked stiff person syndrome advocate, Lea Jabre, to share her tips about life with a rare disease.
Lakevia WardMay 16Necrotising enterocolitis (NEC) and its long-term complications: Lakevia Ward’s experiencesLakevia Ward shares her “bittersweet life” living with the long-term effects of necrotising enterocolitis (NEC)
Marlene SotoApr 25Undiagnosed Children's Day: a puzzling rare disease journeyFor Undiagnosed Day, Marlene Soto, founder of Helping SWANS, tells us her experience of endlessly searching for a diagnosis for her son, AJ.
