Grace created a wonderful video empowering the Tay Sachs community by explaining what Tay Sachs is.

Epilepsy is a neurological disorder that can cause unusual sensation/behaviours and/or seizures, which are bursts of electrical activity...

I joined RARE Revolution in March 2021 in the role of RARE Youth Coordinator, as a 12-month internship. A friend from Niemann-Pick UK had...