Charity and Advocacy 5/8

Jul 9, 2021

World Will Remember You Dad book review

"World Will Remember You Dad: Rise The Rare And Rise" was written by Dr. Shyamala Peesapati, a young dentist based in India, as a...

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Mar 24, 2021

Females with X-linked Diseases Aren’t “Just Carriers"

When I was three years old, my dad was diagnosed with a rare, X-linked disease called Adrenoleukodystrophy (ALD). ALD is a neurological...

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Jan 27, 2021

My rare disease podcast to my rare disease products!

We got to catch up with the wonderful rare disease advocate and youth team ambassador Katy Baker as she makes waves in the world of rare...

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