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RAREYouth
Revolution

Empowering young adults and their families within rare disease communities

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How I turned my rare diagnosis into a free app to connect and empower others

May 22, 2020

How I turned my rare diagnosis into a free app to connect and empower others

13 year old Claire Barrow turned her diagnosis with the rare bone disease hypophosphatasia (HPP) into an APP with global reach.

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