Pandemic Pen Pals allows children and their siblings (aged 5 and over) living with an Inherited Metabolic Disorder to stay connected.

Since being diagnosed with X-Linked Hypophosphatemia (XLH), Sally has put rare advocacy front and center in her life, empowering others.

13 year old Claire Barrow turned her diagnosis with the rare bone disease hypophosphatasia (HPP) into an APP with global reach.